{"id":2814,"date":"2026-07-02T23:39:40","date_gmt":"2026-07-02T20:39:40","guid":{"rendered":"https:\/\/www.ozelegitim.org\/?page_id=2814"},"modified":"2026-07-02T23:52:15","modified_gmt":"2026-07-02T20:52:15","slug":"suregelen-hastalik-2","status":"publish","type":"page","link":"https:\/\/www.ozelegitim.org\/index.php\/suregelen-hastalik-2\/","title":{"rendered":"S\u00fcregelen Hastal\u0131k"},"content":{"rendered":"\t\t
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Tan\u0131m, Tan\u0131lama ve E\u011fitim S\u00fcre\u00e7leri<\/h1>\n\n
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\u00d6nemli Not:<\/b> S\u00fcregelen (kronik) hastal\u0131klar, bireyin do\u011frudan zek\u00e2 d\u00fczeyini veya \u00f6\u011frenme kapasitesini etkileyen bir durum de\u011fildir. Ancak d\u00fczenli tedavi s\u00fcre\u00e7leri, hastane yat\u0131\u015flar\u0131, ila\u00e7 kullan\u0131mlar\u0131 ve fiziksel halsizlik gibi durumlar \u00e7ocu\u011fun okula devaml\u0131l\u0131\u011f\u0131n\u0131 ve enerjisini etkileyebilir. Do\u011fru t\u0131bbi takip, esnek okul d\u00fczenlemeleri ve psikososyal destek ile bu bireyler e\u011fitim hayatlar\u0131nda tam potansiyellerine ula\u015fabilirler.<\/p>\n<\/blockquote>\n\n

1. S\u00fcregelen Hastal\u0131k Nedir?<\/h2>\n\n

S\u00fcregelen hastal\u0131k; \u00e7ocukluk veya gen\u00e7lik d\u00f6neminde ba\u015flayan, uzun s\u00fcreli tedavi, takip ve bak\u0131m gerektiren, tamamen iyile\u015fmesi \u00e7o\u011funlukla m\u00fcmk\u00fcn olmayan ya da s\u00fcrekli tekrarlayan t\u0131bbi durumlard\u0131r.<\/p>\n\n

E\u011fitsel a\u00e7\u0131dan bak\u0131ld\u0131\u011f\u0131nda; bu rahats\u0131zl\u0131klar\u0131n kendisi do\u011frudan bir \u00f6\u011frenme g\u00fc\u00e7l\u00fc\u011f\u00fc yaratmasa da, hastal\u0131\u011f\u0131n getirdi\u011fi fiziksel s\u0131n\u0131rl\u0131l\u0131klar, a\u011fr\u0131lar, t\u0131bbi cihaz ba\u011f\u0131ml\u0131l\u0131klar\u0131 veya s\u0131k s\u0131k okula ara vermek zorunda kal\u0131nmas\u0131 bireyin akademik, sosyal ve duygusal geli\u015fimini olumsuz etkileyerek \u00f6zel e\u011fitimsel tedbirler al\u0131nmas\u0131n\u0131 zorunlu k\u0131lar.<\/p>\n\n

2. En S\u0131k Kar\u015f\u0131la\u015f\u0131lan S\u00fcregelen Hastal\u0131k T\u00fcrleri<\/h2>\n\n

\u00c7ocukluk \u00e7a\u011f\u0131nda e\u011fitim s\u00fcre\u00e7lerini en \u00e7ok etkileyen ve \u00f6zel e\u011fitim deste\u011fi kapsam\u0131na giren ba\u015fl\u0131ca kronik rahats\u0131zl\u0131klar \u015funlard\u0131r:<\/p>\n\n

Diyabet (Tip 1 Diyabet)<\/h3>\n\n
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  • \u00d6zellikleri:<\/strong> V\u00fccudun yeterli ins\u00fclin \u00fcretememesi sonucu ortaya \u00e7\u0131kan ve s\u00fcrekli kan \u015fekeri takibi (sens\u00f6r veya parmak \u00f6l\u00e7\u00fcm\u00fc) ile d\u00fczenli ins\u00fclin enjeksiyonu gerektiren bir durumdur. Okulda ani \u015feker d\u00fc\u015fmesi (hipoglisemi) veya y\u00fckselmesi (hiperglisemi) durumlar\u0131nda acil m\u00fcdahale gerekebilir.<\/li>\n<\/ul>\n\n

    Ast\u0131m ve Kronik Solunum Yolu Hastal\u0131klar\u0131<\/h3>\n\n
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    • \u00d6zellikleri:<\/strong> Havayollar\u0131n\u0131n daralmas\u0131yla karakterize, n\u00f6betler halinde gelen nefes darl\u0131\u011f\u0131 ve \u00f6ks\u00fcr\u00fck durumudur. Toz, tebe\u015fir, a\u011f\u0131r kokular veya yo\u011fun fiziksel aktivite (beden e\u011fitimi dersleri) ast\u0131m krizlerini tetikleyebilir.<\/li>\n<\/ul>\n\n

      Epilepsi (Sara)<\/h3>\n\n
        \n
      • \u00d6zellikleri:<\/strong> Beyindeki sinir h\u00fccrelerinin ge\u00e7ici olarak anormal elektriksel aktivite g\u00f6stermesi sonucu ortaya \u00e7\u0131kan tekrarlay\u0131c\u0131 n\u00f6betlerdir. N\u00f6bet an\u0131nda yap\u0131lacak ilk yard\u0131m ad\u0131mlar\u0131n\u0131n \u00f6\u011fretmen ve okul y\u00f6netimi taraf\u0131ndan \u00e7ok iyi bilinmesi gerekir.<\/li>\n<\/ul>\n\n

        Onkolojik Rahats\u0131zl\u0131klar (\u00c7ocukluk \u00c7a\u011f\u0131 Kanserleri \/ L\u00f6semi)<\/h3>\n\n
          \n
        • \u00d6zellikleri:<\/strong> Kemoterapi veya radyoterapi gibi a\u011f\u0131r tedavi s\u00fcre\u00e7leri nedeniyle \u00e7ocu\u011fun ba\u011f\u0131\u015f\u0131kl\u0131k sisteminin \u00e7ok zay\u0131flad\u0131\u011f\u0131 ve enfeksiyon riskine kar\u015f\u0131 uzun s\u00fcre okuldan uzak kalabildi\u011fi durumlard\u0131r.<\/li>\n<\/ul>\n\n

          Kronik Kalp, B\u00f6brek ve Kan Hastal\u0131klar\u0131 (\u00d6rn: Akdeniz Anemisi)<\/h3>\n\n
            \n
          • \u00d6zellikleri:<\/strong> Bireyin organ i\u015flevlerindeki yetersizlik veya kronik kans\u0131zl\u0131k nedeniyle s\u00fcrekli halsizlik, \u00e7abuk yorulma ve d\u00fc\u015f\u00fck enerji seviyeleri ya\u015famas\u0131 durumudur. A\u011f\u0131r fiziksel aktivitelerden ka\u00e7\u0131nmalar\u0131 gerekir.<\/li>\n<\/ul>\n\n

            3. Tan\u0131lama ve De\u011ferlendirme S\u00fcreci Nas\u0131l \u0130\u015fler?<\/h2>\n\n

            S\u00fcregelen hastal\u0131klarda s\u00fcre\u00e7, ilgili t\u0131p uzmanlar\u0131n\u0131n koydu\u011fu te\u015fhisle ba\u015flar ve \u015fu yasal ad\u0131mlarla e\u011fitsel deste\u011fe d\u00f6n\u00fc\u015f\u00fcr:<\/p>\n\n

            1.T\u0131bbi Tan\u0131lama (Uzman Hekim ve Sa\u011fl\u0131k Kurulu):<\/strong>\u0130lk Ad\u0131m.<\/p>\n\n

            \u00c7ocu\u011fun takip edildi\u011fi ana klinik (\u00c7ocuk Endokrinolojisi, \u00c7ocuk Onkolojisi, \u00c7ocuk \u0130mm\u00fcnolojisi vb.) taraf\u0131ndan hastal\u0131\u011f\u0131n kronik seyri raporlan\u0131r. Tam te\u015fekk\u00fcll\u00fc bir hastaneden \u00e7ocu\u011fun okulda ve e\u011fitimde ne gibi s\u0131n\u0131rl\u0131l\u0131klar ya\u015fayaca\u011f\u0131n\u0131 (\u00f6rne\u011fin enfeksiyon riski, fiziksel aktivite k\u0131s\u0131tl\u0131l\u0131\u011f\u0131) belirten \u00c7\u00d6ZGER (\u00c7ocuklar \u0130\u00e7in \u00d6zel Gereksinim Raporu)<\/strong> \u00e7\u0131kar\u0131l\u0131r.<\/p>\n\n

            2.E\u011fitsel De\u011ferlendirme (RAM S\u00fcreci):<\/strong>\u0130kinci Ad\u0131m.<\/p>\n\n

            Sa\u011fl\u0131k kurulu raporu ile aile, RAM’dan (Rehberlik ve Ara\u015ft\u0131rma Merkezi)<\/strong> randevu al\u0131r. RAM uzmanlar\u0131, \u00e7ocu\u011fun hastal\u0131\u011f\u0131n\u0131n okula devam durumunu ne derece etkiledi\u011fini, bili\u015fsel performans\u0131n\u0131 ve psikososyal ihtiya\u00e7lar\u0131n\u0131 analiz eder.<\/p>\n\n

            3.E\u011fitim Tedbiri Karar\u0131:<\/strong>\u00dc\u00e7\u00fcnc\u00fc Ad\u0131m.<\/p>\n\n

            RAM de\u011ferlendirmesi sonucunda \u00e7ocu\u011fun sa\u011fl\u0131k durumuna g\u00f6re iki temel karar verilebilir:<\/p>\n\n

              \n
            1. Okula devam edebilecek durumdaysa: “Kayna\u015ft\u0131rma\/B\u00fct\u00fcnle\u015ftirme Yoluyla E\u011fitim”<\/strong> karar\u0131 verilir. Okulda ila\u00e7 saati, beslenme d\u00fczeni veya fiziksel aktivite muafiyeti gibi uyarlamalar (BEP) yap\u0131l\u0131r.<\/li>\n\n
            2. Sa\u011fl\u0131k durumu okula gitmesine kesinlikle izin vermiyorsa (\u00d6rn: A\u011f\u0131r ba\u011f\u0131\u015f\u0131kl\u0131k bask\u0131lanmas\u0131): “Evde E\u011fitim”<\/strong> veya hastanede uzun s\u00fcre yatan \u00e7ocuklar i\u00e7in “Hastanede E\u011fitim”<\/strong> karar\u0131 al\u0131narak \u00f6\u011fretmenlerin \u00e7ocu\u011fun aya\u011f\u0131na gitmesi sa\u011flan\u0131r.<\/li>\n<\/ol>\n\n

              4. \u00d6zel E\u011fitim ve M\u00fcdahale Y\u00f6ntemleri<\/h2>\n\n

              S\u00fcregelen hastal\u0131\u011f\u0131 olan \u00e7ocuklar\u0131n e\u011fitiminde ana hedef; sa\u011fl\u0131k bariyerlerini a\u015farak e\u011fitim hakk\u0131ndan mahrum kalmamalar\u0131n\u0131 sa\u011flamak ve akranlar\u0131yla olan makas\u0131 kapatmakt\u0131r.<\/p>\n\n

              E\u011fitimde Uygulanan Ba\u015fl\u0131ca Yakla\u015f\u0131mlar:<\/h3>\n\n
                \n
              • Esnek Bireyselle\u015ftirilmi\u015f E\u011fitim Program\u0131 (BEP):<\/strong> \u00c7ocu\u011fun tedavi g\u00fcnleri, hastane kontrolleri veya halsizlik d\u00f6nemleri g\u00f6z \u00f6n\u00fcnde bulundurularak s\u0131nav tarihleri, \u00f6dev teslimleri ve ders y\u00fck\u00fc esnek bir \u015fekilde planlan\u0131r.<\/li>\n\n
              • Evde ve Hastanede E\u011fitim Hizmetleri:<\/strong> Okula gidemeyen \u00e7ocuklar i\u00e7in MEB taraf\u0131ndan g\u00f6revlendirilen \u00f6\u011fretmenler evde veya hastane odas\u0131nda \u00e7ocu\u011fun d\u00fczeyine uygun bire bir ders anlat\u0131m\u0131 ger\u00e7ekle\u015ftirir. Dijital \u00f6\u011frenme platformlar\u0131 aktif olarak s\u00fcrece dahil edilir.<\/li>\n\n
              • Fiziksel ve \u00c7evresel Uyarlamalar:<\/strong> Diyabetli bir \u00e7ocu\u011fun derste kan \u015fekeri \u00f6l\u00e7mesine veya tuvalete gitmesine izin verilmesi; ast\u0131ml\u0131 bir \u00e7ocuk i\u00e7in s\u0131n\u0131f\u0131n tozsuz ve havadar tutulmas\u0131; kalp hastas\u0131 bir \u00e7ocu\u011fun a\u011f\u0131r fiziksel egzersizlerden muaf tutulmas\u0131 gibi mikro d\u00fczenlemelerdir.<\/li>\n\n
              • Psikososyal ve Duygusal Destek:<\/strong> Hastal\u0131k ve tedavi s\u00fcre\u00e7leri nedeniyle kayg\u0131, akranlar\u0131ndan geri kalma korkusu veya d\u0131\u015flanm\u0131\u015fl\u0131k hissi ya\u015fayan \u00e7ocuklara ve ailelerine okul rehberlik servisi taraf\u0131ndan d\u00fczenli psikolojik dan\u0131\u015fmanl\u0131k sa\u011flan\u0131r.<\/li>\n<\/ul>\n\n

                5. Aileler ve Okullar \u0130\u00e7in Ev-Okul \u0130\u015f Birli\u011fi Rehberi<\/h2>\n\n

                S\u00fcregelen hastal\u0131klarda en kritik nokta, aile ile okul y\u00f6netimi ve \u00f6\u011fretmenler aras\u0131nda kurulacak kesintisiz ve \u015feffaf ileti\u015fim k\u00f6pr\u00fcs\u00fcd\u00fcr:<\/p>\n\n

                  \n
                • Okulu Eksiksiz Bilgilendirin:<\/strong> E\u011fitim-\u00f6\u011fretim y\u0131l\u0131 ba\u015f\u0131nda okul y\u00f6netimini ve s\u0131n\u0131f \u00f6\u011fretmenini \u00e7ocu\u011fun hastal\u0131\u011f\u0131, kullanmas\u0131 gereken ila\u00e7lar, olas\u0131 acil durum belirtileri ve bu durumlarda yap\u0131lmas\u0131 gerekenler hakk\u0131nda yaz\u0131l\u0131 ve s\u00f6zl\u00fc olarak bilgilendirin.<\/li>\n\n
                • Acil Durum Eylem Plan\u0131 Olu\u015fturun:<\/strong> S\u0131n\u0131fta ya\u015fanabilecek bir kriz an\u0131nda (Epilepsi n\u00f6beti, hipoglisemi \u015foku vb.) \u00f6\u011fretmenin ne yapaca\u011f\u0131n\u0131, hangi ilac\u0131 uygulayaca\u011f\u0131n\u0131 (veya uygulayamayaca\u011f\u0131n\u0131) ve ilk olarak hangi numaray\u0131 arayaca\u011f\u0131n\u0131 \u00f6nceden netle\u015ftirin.<\/li>\n\n
                • Okuldan Uzak Kald\u0131\u011f\u0131 D\u00f6nemleri Telafi Edin:<\/strong> \u00c7ocu\u011fun hastanede veya evde yatarak tedavi g\u00f6rd\u00fc\u011f\u00fc d\u00f6nemlerde s\u0131n\u0131f \u00f6\u011fretmeniyle ba\u011f\u0131n\u0131 koparmay\u0131n. Haftal\u0131k \u00f6devleri, ders notlar\u0131n\u0131 dijital ortamda takip ederek \u00e7ocu\u011fun e\u011fitim ak\u0131\u015f\u0131n\u0131n i\u00e7inde kalmas\u0131n\u0131 sa\u011flay\u0131n.<\/li>\n\n
                • Akran \u0130leti\u015fimini Destekleyin:<\/strong> \u00c7ocu\u011funuzun hastal\u0131\u011f\u0131n\u0131 (e\u011fer \u00e7ocuk da onayl\u0131yorsa) s\u0131n\u0131f arkada\u015flar\u0131na anlayabilecekleri bir dille anlatmas\u0131 i\u00e7in \u00f6\u011fretmenden destek isteyin. Bu, bula\u015f\u0131c\u0131 olmayan bu hastal\u0131klar hakk\u0131nda s\u0131n\u0131fta olu\u015fabilecek yanl\u0131\u015f anlamalar\u0131 ve sosyal izolasyonu engeller.<\/li>\n<\/ul>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

                  Tan\u0131m, Tan\u0131lama ve E\u011fitim S\u00fcre\u00e7leri \u00d6nemli Not: S\u00fcregelen (kronik) hastal\u0131klar, bireyin do\u011frudan zek\u00e2 d\u00fczeyini veya \u00f6\u011frenme kapasitesini etkileyen bir durum de\u011fildir. Ancak d\u00fczenli tedavi s\u00fcre\u00e7leri, hastane yat\u0131\u015flar\u0131, ila\u00e7 kullan\u0131mlar\u0131 ve […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"cybocfi_hide_featured_image":"","footnotes":""},"class_list":["post-2814","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.ozelegitim.org\/index.php\/wp-json\/wp\/v2\/pages\/2814","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ozelegitim.org\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.ozelegitim.org\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.ozelegitim.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ozelegitim.org\/index.php\/wp-json\/wp\/v2\/comments?post=2814"}],"version-history":[{"count":7,"href":"https:\/\/www.ozelegitim.org\/index.php\/wp-json\/wp\/v2\/pages\/2814\/revisions"}],"predecessor-version":[{"id":2823,"href":"https:\/\/www.ozelegitim.org\/index.php\/wp-json\/wp\/v2\/pages\/2814\/revisions\/2823"}],"wp:attachment":[{"href":"https:\/\/www.ozelegitim.org\/index.php\/wp-json\/wp\/v2\/media?parent=2814"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}